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User Profile Analysis September 2003



User Profile Analysis

30 September 2003















Background Information


The Independent Living Funds were originally established in 1988 as a UK wide resource, dedicated to the financial support of disabled people, to enable them to choose to live in the community rather than in residential care.

The Funds are constituted as publicly financed discretionary trusts, and are funded by the Department for Work and Pensions (DWP) in Great Britain and the Department for Social Development in Northern Ireland. For both Funds, awards are made in the form of regular four-weekly payments to individuals, which are used to buy personal care and/or domestic assistance. Recipients may use care agencies, or employ personal assistants but may not employ relatives who live in the same house.

There are two Funds: the Extension Fund and the 1993 Fund (93 Fund). The Extension Fund was closed to new applications in March 1993 and now continues to assists those people who were ILF users between 1998 and 1993. The 1993 Fund accepts new users and works in partnership with Local Authorities. The 1993 Fund is able to pay up to a maximum of £395 a week, the Extension is able to pay up to a maximum of £665 a week. 









Contents
 
Introduction 4
 
1 93 Fund Summary 5
 
2 Extension Fund Summary 7
 
Facts and Figures at 30 September 2003 9
 
Status of all current users and outstanding applications 9
 
Status of applications received since 1 April 2003 9
 
Reasons for all award cancellations since 1 April 2003 9
 
Reasons for disallowance of applications received since 1 April 2003 10
 
Reasons for refusal of applications received since 1 April 2003 10
 
Current Users: 10
 
Gender 10
 
Age 10
 
Household 10
 
Income Support 10
 
Carers Allowance 11
 
Disability 11
 
Geographical Distribution of users 30 September 2003 12


 

 

 

Introduction to the September 2003 report


This report provides a profile analysis of our clients, at the quarter ending 30 September 2003. 

A summary of statistics has been provided for each of the two Funds detailing the main facts and figures. 

Following the summaries, a series of tables provide further statistical information. Every effort has been made to provide as thorough a picture as possible, however, due to the limitations of technology when the original Fund was established, some data for the Extension Fund is unfortunately incomplete. 

In order to provide a context for the figures, you may like to know that, a combined administration operates for the two Funds, with 156 staff in Nottingham, and 80 self-employed Visiting Social Workers who carry out assessments throughout the UK.

During the past quarter the Fundsí staff received: 22,170 items of incoming post and 38,027 incoming telephone calls. In the same period a total of 49,691 individual user payments were made. 

After reading the report, if you would like further information concerning the Fundís work, please contact our Customer Services team on 0845 6018815 or Email them at: funds@ilf.org.uk. Alternatively our website can be accessed at www.ilf.org.uk, or you can write to us at the address below:

Independent Living Funds
PO Box 7525
Nottingham
NG2 4ZT

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1 93 FUND SUMMARY

1.1 By 30 September 2003, there were 9,576 users receiving payment (or with suspended payments), from the 93 Fund, an increase of 1,011 clients or 11.8% since 30 September 2002. In addition, 741 additional offers of funding had been made and were awaiting the userís acceptance, and 1,009 applications were awaiting decision. (Table 1)

1.2 1,797 applications had been received since 1 April 2003, of which 232 were in payment or suspension, 427 had offers outstanding, and 865 applications were awaiting decision. (Table 2)

1.3 30.8% of all award cancellations since 1 April 2003 had been because of death, and 21.3% were because of admission to residential care or hospital. (Table 3)

1.4 Of applications since 1 April 2003 rejected before a VSW assessment visit (i.e. 'disallowed'), 86.9% did not receive higher level DLA (Table 4). For September 2002, 70.6% of the disallowances were for this reason. 9.1% of applications received since 1 April 2003 were rejected or withdrawn following a VSW visit. (Table 5)

1.5 The average award in payment was £248.53 per week. This had increased by £14.50 since 30 September 2002. 

1.6 At 30 September 2003 93 Fund users were: 

∑ Evenly divided across gender;
∑ 42.1% were under 36 years of age;
∑ 40.8% were living with parents, and 27.3% were living alone; 
∑ 81.4% were in receipt of Income Support, and 28.8% had carers who received Invalid Care Allowance; and
∑ 26.6% had a severe learning disability, 15.5% had multiple sclerosis, and 14.6% had cerebral palsy;

Compared with 30 September 2002 there had been little variation in these figures. (Tables: 6.1-6.6)

1.7 Distribution of current users by region:

 

 

1.8 Current users by local authority: (Table 7)

All local authorities had 93 Fund users. The average density of users was 16.3 per 100,000 of the population, an increase of 1.3 since 30 September 2002. 

The 20 LAs with the highest densities of users are detailed below; 11 are in Wales, 7 in Scotland and 2 in England:




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2 EXTENSION FUND SUMMARY

2.1 By 30 September 2003, there were 6,463 Extension Fund users receiving payment (or with suspended payments), a decrease of 970 users since 30 September 2002. (Table 1) 

2.2 The average award in payment was £218 per week. This had increased by £28.00 since 30 September 2002. 

2.3 30.2% of all award cancellations since 1 April 2003 had been because of death, and 12.1% were because of admission to residential care or hospital. (Table 3) 

2.4 At 30 September 2003:

∑ 55.9% of users were female;
∑ 26.7% were under 36 years of age and 17.3% were over 65;
∑ 36.8% were living with parents and 28.5% were living alone;
∑ 89.7% were in receipt of Income Support and 30.8% had carers who receive carers allowance; and
∑ 17.9% had a severe learning disability, 14.5% had cerebral palsy and 11.9% had multiple sclerosis. 

2.6 Distribution of users clients by region






2.7 Distribution of current users by local authority: (Table 7)

The maximum density of Extension Fund users in any single authority was 73.3 clients per 100,000 of the population, and the average was 11.4. The 20 Local authorities with the highest densities of users are detailed below. 3 Northern Ireland Boards, 9 Scottish, 5 English and 3 Welsh authorities make up the 20.


 

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Facts and Figures at 30 September 2003

1
Status of all current clients and outstanding applications

 

93 FUND

EXT FUND

In payment 9,050 79.9% 6,233 96.4%
Awaiting decision 1,009 8.9% 0 0.0%
Outstanding offers 741 6.5% 0 0.0%
Pay suspended 526 4.6% 230 3.6%
Total 11,326   6,463  


2 Status of applications received since 1 April 2003

 

93 FUND

Awaiting decision 865 48.1%
Outstanding offers 427 23.8%
In payment 228 12.7%
Refused (see below) 163 9.1%
Disallowed (see below) 107 6.0%
Suspended 4 0.2%
Cancelled (see below) 3 0.2%
Total 1,797  
Cancelled = award cancelled after payment
Disallowed = application rejected before VSW visit
Refused = application rejected or closed before going into payment


3 Reasons for all award cancellations since 1 April 2003

 

93 FUND

EXT FUND

Applicant death 168 30.8% 127 30.2%
Permanent admission to residential care 104 19.1% 43 10.2%
Care not employed 52 9.5% 101 24.0%
No reply to correspondence 45 8.3% 9 2.1%
Social services < Threshold Sum 40 7.3% 0 0.0%
Application withdrawn 33 6.1% 3 0.7%
SSD takeover package 23 4.2% 7 1.7%
Withdrawal policy implemented 17 3.1% 4 1.0%
Temporary admission to hospital 12 2.2% 8 1.9%
Not independent living 8 1.5% 2 0.5%
Applicant in respite care 7 1.3% 17 4.0%
Inappropriate use of funds 6 1.1% 11 2.6%
Savings above limit 6 1.1% 7 1.7%
Sufficient income 5 0.9% 38 9.0%
DLA reduced 3 0.6% 15 3.6%
No reply to review 3 0.6% 3 0.7%
Temporary admission to residential care 3 0.6% 3 0.7%
Break in care 2 0.4% 2 0.5%
Lost contact 2 0.4% 15 3.6%
Temporary breakdown of package 2 0.4% 0 0.0%
3rd party breakdown 1 0.2% 1 0.2%
Incorrect bank details 1 0.2% 0 0.0%
No carer information 1 0.2% 4 1.0%
Package over Maximum Sum 1 0.2% 0 0.0%
0 0 0.0% 0 0.0%
Total 545   420  


4 Reasons for disallowance of applications received since 1 April 2003

 

93 Fund

Not on higher rate DLA (care) 93 86.9%
Cost of package more than £665 9 8.4%
Age not 16 to 65 3 2.8%
Applicant death 1 0.9%
LA not supporting application 1 0.9%
Total 107  


5 Reasons for refusal of new applications received since 1 April 2003

 

93 FUND

Application withdrawn 77 47.2%
Applicant death 20 12.3%
Package over Maximum Sum 14 8.6%
No reply to correspondence 11 6.7%
Permanent admission to residential care 11 6.7%
Withdrawal policy implemented 6 3.7%
Social services < Threshold Sum 5 3.1%
Sufficient income 5 3.1%
SSD takeover package 4 2.5%
Not independent living 3 1.8%
Savings above limit 3 1.8%
Temporary admission to hospital 2 1.2%
Care not employed 1 0.6%
DLA reduced 1 0.6%
Total 163  


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6 Profile of current clients

6.1 Gender

 

93 FUND

EXT FUND
Female 4,836 50.5% 3,610 55.9%
Male 4,740 49.5% 2,853 44.1%
Total 9,576   6,463  


6.2 Age

  93 FUND EXT FUND
0 - 15 yrs     17 0.3%
16 - 25 yrs 1,826 19.1% 258 4.0%
26 - 35 yrs 2,208 23.1% 1,450 22.4%
36 - 45 yrs 2,108 22.0% 1,485 23.0%
46 - 55 yrs 1,789 18.7% 1,120 17.3%
56 - 65 yrs 1,314 13.7% 1,012 15.7%
66+ yrs 331 3.5% 1,121 17.3%
Total 9,576   6,463  


6.3 Household

  93 FUND EXT FUND
With parent(s) 3,908 40.8% 2,379 36.8%
Lives alone 2,614 27.3% 1,845 28.5%
With other(s) 1,343 14.0% 602 9.3%
With spouse 1,321 13.8% 1,378 21.3%
Lone parent 210 2.2% 65 1.0%
With adult child(ren) 180 1.9% 194 3.0%
Total 9,576   6,463  


6.4 Income Support

  93 FUND EXT FUND
In receipt of IS 7,791 81.4% 5,798 89.7%
Not in receipt of IS 1,785 18.6% 665 10.3%
Total 9,576   6,463  

 
6.5 Invalid Care Allowance

 

93 FUND

EXT FUND
Carer in receipt of ICA 2,761 28.8% 1,988 30.8%
No carer in receipt of ICA 6,815 71.2% 4,475 69.2%
Total 9,576   6,463  


6.6 Disability

93 FUND EXT FUND
Severe learning disability 2,549 26.6% 1,154 17.9%
Multiple sclerosis 1,485 15.5% 767 11.9%
Cerebral Palsy 1,402 14.6% 934 14.5%
Spinal injury 659 6.9% 389 6.0%
Brain damage 497 5.2% 291 4.5%
Down's syndrome 479 5.0% 242 3.7%
Cerebro-vascular 429 4.5% 307 4.8%
Muscular dystrophy 295 3.1% 222 3.4%
Epilepsy 237 2.5% 140 2.2%
Arthritis 225 2.3% 576 8.9%
Mental illness 128 1.3% 60 0.9%
Spina bifida 117 1.2% 552 8.5%
Friedreich's ataxia 84 0.9% 68 1.1%
Parkinson's disease 80 0.8% 41 0.6%
Huntingdon's Chorea 77 0.8% 8 0.1%
Motor Neurone disease 49 0.5% 15 0.2%
Cancer 40 0.4% 40 0.6%
Polio damage 39 0.4% 77 1.2%
Dementia 36 0.4% 30 0.5%
Hydrocephalus 33 0.3% 27 0.4%
Lung disease 28 0.3% 67 1.0%
Heart disease 26 0.3% 90 1.4%
Aids related 22 0.2% 149 2.3%
Physical malformation 22 0.2% 27 0.4%
Osteoporosis 13 0.1% 20 0.3%
Blood disease 5 0.1% 4 0.1%
Skin disease 1 0.0% 166 2.6%
Other 519 5.4% 0 0.0%
Total 9,576 6,463

 

 

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