ILF Logo
User Profile Analysis March 2003

 



User Profile Analysis

31 March 2003
















Background Information


The Independent Living Funds were originally established in 1988 as a UK wide resource, dedicated to the financial support of disabled people, to enable them to choose to live in the community rather than in residential care.

The Funds are constituted as publicly financed discretionary trusts. For both Funds, awards are in the form of regular four-weekly payments to individuals, which are used to buy personal care. Recipients may use care agencies, or employ personal assistants, but may not employ relatives who live in the same house.

In the case of the Extension Fund, the aim has been to continue paying awards to people who were clients of the original ILF, which was closed to new applicants at the end of March 1993. The 1993 Fund was set up at that time to accept new applications from people who needed more help than their local authority was able to provide.





 

Contents
 
   
Introduction to the end of year report     5
 
1 1993 Fund Summary    
 
2 Extension Fund Summary 9
 
Statistical Analysis at 31 March 2003 11
 
Status of all current users and outstanding applications  11
 
Status of applications received since 1 April 2002 11 
 
Reasons for all award cancellations since 1 April 2002 11
 
Reasons for disallowance of applications received since 1 April 2002 12
  
Reasons for refusal of applications received since 1 April 2002 12
 
Profile of current users: 13
 
Gender 13
 
Age 13
 
Household 13
 
Income Support 13
 
Carers Allowance 13
 
Disability 14
 
Regional comparisons 15
 
Age profile 15
 
Most prevalent disabilities 16
 
Comparisons with national data 17
 
Number of users compared with HRDLA recipients 17
 
Users/HRDLA recipients compared with overall population 17
 
Age profile of users compared with HRDLA recipients 18
 
Geographical distribution of users 31 March 2003 19


 

 

 


Introduction to the end of year report


This report provides a profile analysis of the Independent Living Fundsí Users at the year ending 31 March 2003. 

A summary of statistics has been provided for each of the two Funds detailing the main facts and figures, and developments during the year. 

Following the summaries, a series of tables provide further statistical information. Every effort has been made to provide as thorough a picture as possible. However, due to the limitations of technology when the original Fund was established, some data for the Extension Fund is unfortunately incomplete. 

In order to provide a context for the figures, you may like to know that, on 31 March 2003 a combined administration operated for the two Funds, with 138 staff in Nottingham, and 82 self-employed Visiting Social Workers (VSW) who carry out assessments throughout the UK.

During the past year the Fundsí staff received: over 91,000 items of incoming post and over 178,000 incoming telephone calls. In the same period a total of 193,188 individual client payments were made.

After reading the report, if you would like further information concerning the Fundsí work, please contact our Customer Services team on 0845 6018815 or Email them at: funds@ilf.org.uk. Alternatively our website can be accessed at www.ilf.org.uk, or you can write to us at the address below:

Independent Living Funds
PO Box 7525
Nottingham
NG2 4ZT


Back To Top




1 1993 FUND SUMMARY


1.1 By 31 March 2003, there were 9,006 disabled people receiving payment (or with suspended payments) from the 1993 Fund, an increase of 946 users or 11% since 31 March 2002. 850 additional offers of funding had been made and were awaiting the users acceptance. 1,145 applications were awaiting decision. (Table 1)

1.2 3,203 applications had been received since 1 April 2002, of which 926 were in payment or suspension, and 678 had outstanding offers. 963 applications were awaiting decision. (Table 2)

1.3 40.1% of all award cancellations since 1 April 2002 had been because of death. Another 19.5% were because of admission to residential care or hospital. (Table 3)

1.4 Of applications since 1 April 2002, rejected before a VSW assessment visit (ie 'disallowed'), 68.9% did not receive higher level DLA (Table 4). This figure has fallen by 10.1% since 31 March 2002. The Fund is hopeful that improved communication with Local Authorities, to enable an increased understanding of application criteria, will further reduce the level of unsuccessful applications. Only 12% of applications were rejected or withdrawn following a VSW visit. (Table 5)

1.5 The average award in payment was £242.30 per week. This had increased by £15.30 or 6.7% since 31 March 2002 and by £3.30 or 1.4% since 31 December 2002.

1.6 At 31 March 2003 ILF users were: 

∑ Evenly divided across gender;
∑ 42.2% were under 36 years of age;
∑ 41.1% were living with parents, and 27.3% were living alone; 
∑ 82.1% were in receipt of Income Support, and 29.1% had carers who received Carers Allowance;
∑ 25.8% had a severe learning disability, 15.5% had multiple sclerosis, and 14.9% had cerebral palsy.




Compared with 31 March 2002 there had been little variation in these figures with the exception of the percentage of users with a severe learning disability which had fallen due to users with Downs Syndrome being categorised separately. (Tables 6.1-6.6)


1.7 Analysis of users by region:


The age profile of 1993 Fund users was generally similar across the regions. There were however, a slightly higher proportion of older clients in Northern Ireland, with 20.3% over the age of 55 compared with 16.7% in Great Britain. There was also a higher proportion of users in Scotland under the age of 25, 25.4% compared with 19.2% across the whole UK. (Table 7.1)

Wales had a higher proportion of users with severe learning disabilities at 36.8% compared with 30.8% across the whole UK. 


Wales also had a higher proportion of users with epilepsy at 4.7% compared with 2.9% across the UK. The number of users in Wales with multiple sclerosis was lower than average at 7.7% compared with 18.5% for the UK. (Table 7.2)

Over the whole UK, 1993 Fund users represented 2.4% of Higher Rate DLA recipients. This figure had increased by 0.5% since March 2002 (Table 8.1). The rate was almost twice as high in Wales as in England, at 4.1% compared with 2.2% and lowest in Northern Ireland, at 1.3%, where the level of receipt of HRDLA is much higher than elsewhere. (Table 8.2) 

The number of 1993 Fund users as a proportion of HRDLA recipients decreased with age from 4.9% in the 16-25 age group to 0.9% in the 56-65 age group. There was the same pattern in Northern Ireland but at lower rates. 

1.8 Current users by local authority: (Table 9)

All local authorities had 1993 Fund users. The maximum density in any single authority was 74.2 users per 100,000 of the population. The average was 15.3 users per 100,000 of the population, an increase of 1.3 since 31 March 2002. 

The 20 local authorities with the highest densities of users are detailed below. 11 of the 20 are in Wales, 7 in Scotland and 2 in England:





Back To Top


2 EXTENSION FUND SUMMARY


2.1 By 31 March 2003, there were 6,877 disabled people receiving payments (or with suspended payments) from the Extension Fund a decrease of 921 since 31 March 2002. (Table 1) 

2.2 The average award in payment was £204.31 per week. This had increased by £25.31 or 14.1% since 31 March 2002 and by £6.31 or 3.2% since 31 December 2002.

2.3 39.1% of all award cancellations since 1 April 2002 had been because of death. Another 22% were due to the discovery that care had not been employed. (Table 3) 

2.4 At 31 March 2003: 

∑ 56% of users were female; 
∑ 27.5% were under 36 years of age and 17.2% were over 65;
∑ 35.8% were living with parents and 27.4% were living alone;
∑ 89.9% were in receipt of Income Support, and 30.3% had carers who received Carers Allowance.
∑ 16.8% had a severe learning disability, 14.1% had cerebral palsy and 12% had multiple sclerosis;

There has been little variation in these figures since 30 March 2002. (Tables 6.1-6.6)

2.5 89.9% were in receipt of Income Support.

2.6 Analysis of users by region




Northern Ireland had a higher proportion of older users at 26.5% above 65 years of age compared with 16.4% in Great Britain, and a slightly higher proportion of younger ones at 8% under 25 compared with 4.1% in Great Britain. (Table 7.1)

2.7 Distribution of current users by local authority: (Table 9)

The maximum density of Extension Fund users in any single authority was 74.9 users per 100,000 of the population, and the average was 11.7. The 20 Local authorities with the highest densities of users are detailed below. All 4 Northern Ireland Boards, 9 Scottish, 6 English and 1 Welsh authority make up the 20.


Back To Top



Statistical Analysis at 31 March 2003


1 Status of all current users and outstanding applications

93 FUND 

EXT FUND

In payment  8,394  76.3% 6,478 94.2%
Awaiting decision 1,145 10.4% 0 0.0%
Outstanding offers 850 7.7% 0 0.0%
Pay suspended 612  5.6% 399  5.8%
Total  11,001 6,877

 

2 Status of applications received since 1 April 2002

 

93 FUND

Awaiting decision 963 30.1%
In payment 898 28.0%
Outstanding offers 678 21.2%
Refused (see below) 375 11.7%
Disallowed (see below) 235 7.3%
Suspended 28 0.9%
Cancelled (see below) 26 0.8%
Total 3,203  

Cancelled = award cancelled after payment
Disallowed = application rejected before VSW visit
Refused = application rejected or closed before going into payment

3 Reasons for all award cancellations since 1 April 2002
† 

 

93 FUND

EXT FUND

Applicant death 371 40.1% 360 39.1%
Permanent admission to residential care 180 19.5% 92 10.0%
Care not employed 93 10.1% 203 22.0%
Social services < Threshold Sum 44 4.8% 0 0.0%
Application withdrawn 41 4.4% 9 1.0%
No reply to correspondence 41 4.4% 16 1.7%
SSD takeover package 37 4.0% 11 1.2%
Not independent living 20 2.2% 5 0.5%
Savings above limit 13 1.4% 13 1.4%
Lost contact  12 1.3% 31 3.4%
Temporary admission to hospital 12 1.3% 12 1.3%
Applicant in respite care 11 1.2% 43 4.7%
Break in care 10 1.1% 11 1.2%
DLA reduced 8 0.9% 28 3.0%
Withdrawal policy implemented 8 0.9% 4 0.4%
Sufficient income 7 0.8% 56 6.1%
Temporary admission to residential care 7 0.8% 2 0.2%
Inappropriate use of funds 5 0.5% 9 1.0%
Other 0.5% 16 1.7%
Total 925   921  


†  
4 Reasons for disallowance of applications received since 1 April 2002
† 

 

93 FUND

Not on higher rate DLA (care) 162 68.9% 
Cost of package more than £665 42  17.9%
LA not supporting application 8 3.4%
Application withdrawn 6 2.6%
Age not 16 to 65 4 1.7% 
Applicant death 4 1.7%
Capital greater than limit 4 1.7%
Other 2 0.9%
LA not meeting first £200 1 0.4%
No reply to correspondence 1 0.4%
Prognosis less than 6 months  1 0.4%
Application premature 0 0.0%
Total 235  

Disallowed = application rejected before VSW visit 
† 
† 
Back To Top


†††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††††
5 Reasons for refusal of new applications received since 1 April 2002
† 

 

93 FUND

Application withdrawn 195 52.0%
Applicant death 45 12.0%
No reply to correspondence 33 8.8%
Sufficient income 16 4.3%
Package over Maximum Sum 15 4.0%
Withdrawal policy implemented 14 3.7%
Permanent admission to residential care 14 3.7%
Social services < Threshold Sum 10 2.7%
Savings above limit 6 1.6%
Temporary admission to hospital  6 1.6%
Care not employed  5 1.3%
SSD takeover package 5 1.3%
Not independent living 3 0.8%
Applicant in respite care 2 0.5%
DLA reduced 2 0.5%
Temporary admission to residential care 2 0.5%
No carer information 2 0.5%
Total 375  

Refused = application rejected or closed before going into payment 
† 
† 
6 Profile of current users

6.1 Gender

 

93 FUND

EXT FUND

Female 4,583 50.9% 3,850 56.0%
Male 4,423 49.1% 3,027 44.0%
Total  9,006   6,877  

6.2 Age

 

93 FUND

EXT FUND

0 - 15 yrs 0 0.0% 38 0.6%
16 - 25 yrs 1,730  19.2% 264 3.8%
26 - 35 yrs 2,086 23.2% 1,589 23.1%
36 - 45 yrs 1,990 22.1% 1,527 22.2%
46 - 55 yrs  1,681 18.7% 1,202  17.5% 
56 - 65 yrs 1,211 13.4% 1,071 15.6%
66+ yrs 308 3.4% 1,186 17.2%
Total 9,006   6,877  

6.3 Household 

 

93 FUND

EXT FUND

With parent(s) 3,700 41.1% 2,460 35.8%
Lives alone 2,459  27.3% 1,884 27.4%
With spouse 1,253 13.9% 1,460 21.2%
With other(s) 1,214 13.5% 799 11.6%
Lone parent 204 2.3% 72 1.0%
With adult child(ren) 176 2.0% 202 2.9%
Total 9,006   6,877  

6.4 Income Support

 

93 FUND

EXT FUND

In receipt of IS 7,391 82.1% 6,183 89.9%
Not in receipt of IS 1,615 17.9% 694 10.1%
Total 9,006   6,877  

6.5 Invalid Care Allowance

 

93 FUND

EXT FUND

Carer in receipt of ICA 2,623 29.1% 2,085 30.3%
No carer in receipt of ICA 6,383 70.9% 4,792 69.7%
Total 9,006   6,877  

6.6 Disability

 

93 FUND

EXT FUND

Learning disability 2,324 25.8% 1,151 16.8%
Multiple sclerosis  1,393 15.5% 826 12.0%
Cerebral Palsy 1,338 14.9% 970 14.1%
Spinal injury 635 7.1% 570 8.3%
Brain damage 482 5.4% 315 4.6%
Down's syndrome 445 4.9% 257 3.7%
Cerebro-vascular 411 4.6% 341 5.0%
Muscular dystrophy 288 3.2% 227 3.3%
Epilepsy 219 2.4% 152 2.2%
Arthritis 210 2.3% 622 9.1%
Mental illness 133 1.5% 66 1.0%
Spina bifida 108 1.2% 173 2.5%
Friedreich's ataxia 75 0.8% 72 1.0% 
Parkinson's disease 72 0.8% 44 0.6%
Huntingdons chorea 71 0.8% 9 0.1%
Motor Neurone disease 48 0.5% 16 0.2%
Dementia 41 0.5% 36 0.5%
Polio damage 37 0.4% 81 1.2%
Cancer 33 0.4% 47 0.7%
Hydrocephalus 31 0.3% 28 0.4%
Aids related 30 0.3% 175 2.5%
Heart disease 26 0.3% 100 1.5%
Lung disease 24 0.3% 71 1.0%
Physical malformation 19 0.2% 31 0.5%
Osteoporosis 9 0.1% 21 0.3%
Blood disease 7 0.1% 4 0.1%
Skin disease 0.0% 2 0.0%
Other 496 5.5% 470  6.8%
  9,006   6,877  

                                                                                                                                                                                                                                     
Back To Top

7 Regional comparisons 

7.1 Age profile
 

93 Fund

England

Scotland

Wales

Great Britain

N. Ireland

U K

16 - 25 yrs 1,100 17.8% 343 25.4% 216 19.3% 1,659 19.2% 71 20.3% 1,730 19.2%
26 - 35 yrs 1,442 23.3% 253 18.7% 322 28.8% 2,017 23.3% 69 19.7% 2,086 23.2%
36 - 45 yrs 1,375 22.2% 275 20.4% 263 23.5% 1,913 22.1% 77 22.0% 1,990 22.1%
46 - 55 yrs 1,192 19.3% 250 18.5% 177 15.8% 1,619 18.7% 62 17.7% 1,681 18.7%
56 - 65 yrs 867 14.0% 178 13.2% 107 9.6% 1,152 13.3% 59 16.9% 1,211 13.4%
66+ yrs 211 3.4% 51 3.8% 34 3.0% 296 3.4% 12 3.4% 308 3.4%
Total 6,187   1,350   1,119   8,656   350   9,006  

 

Ext Fund England Scotland Wales Great Britain N. Ireland U K
0 - 15 yrs 22 0.5% 6 0.5% 1 0.2% 29 0.5% 9 1.4% 38 0.6%
16 - 25 yrs 173 3.9% 42 3.2% 8 2.0% 223 3.6% 41 6.6% 264 3.9%
26 - 35 yrs 1088 24.2% 292 22.1% 80 19.7% 1,460 23.5% 129 20.7% 1,589 23.2%
36 - 45 yrs 1069 23.8% 279 21.2% 89 21.9% 1,437 23.1% 90 14.4% 1,527 22.3%
46 - 55 yrs 791 17.6% 237 18.0% 82 20.2% 1,110 17.9% 92 14.8% 1,202 17.6%
56 - 65 yrs 689 15.3% 197 14.9% 79 19.5% 965 15.5% 106 17.0% 1,071 15.7%
66+ yrs 681 15.2% 272 20.6%  68 16.7% 1,021 16.4% 165 26.5% 1,186 17.3%
Total 4,491   1,319   406   6,216   623   6,839  

      
       
            
7.2 Most prevalent disabilities 

93 Fund England Scotland Wales Great Britain N. Ireland U K
Severe learning difficulty 1,510 24.4% 298 22.1% 412 36.8% 2,220 30.7% 104 29.7% 2,324 30.8%
Multiple Sclerosis 1,033 16.7% 224 16.6% 86 7.7% 1,343 18.6% 50 14.3% 1,393 18.5%
Cerebral Palsy 877 14.2% 231 17.1% 192 17.2% 1,300 18.0% 38 10.9% 1,338 17.8%
Spinal injury 496 8.0% 74 5.5% 40 3.6% 610 8.4% 25  7.1% 635  8.4%
Brain damage 335 5.4% 67 5.0% 60 5.4% 462 6.4% 20 5.7% 482 6.4%
Down's syndrome 220 3.6% 82 6.1% 118 10.5% 420 5.8%  25 7.1% 445 5.9%
Cerebro-vascular 291 4.7% 70 5.2% 21 1.9% 382 5.3% 29 8.3% 411 5.5%
Muscular Dystrophy 230 3.7% 32 2.4% 20 1.8% 282 3.9% 6 1.7% 288 3.8%
Epilepsy 129 2.1% 31 2.3% 53 4.7% 213 2.9% 6 1.7% 219 2.9%


Ext Fund England Scotland Wales Great Britain N. Ireland U K
Severe learning difficulty 731 16.2% 220 16.6% 63 15.5% 1,013 21.0% 138 21.8% 1,152 21.8%
Cerebral Palsy 677 15.0% 180 13.6% 52 12.8% 909 18.9% 61 9.7% 970 18.4%
Multiple Sclerosis 543 12.0% 165 12.5% 61 15.0% 769 16.0% 57 9.0% 826 15.6%
Arthritis 327 7.2% 154 11.6% 46 11.3% 527 10.9% 95 15.0% 622 11.8%
Spinal injury 430 9.5% 81 6.1% 42 10.3% 553 11.5% 17 2.7% 570 10.8%
Cerebro-vascular 209 4.6% 77 5.8% 22 5.4% 308 6.4% 33 5.2% 341 6.5%
Brain damage 232 5.1% 56 4.2% 13 3.2% 301 6.2% 14 2.2% 315 6.0%
Down's syndrome 151 3.3% 66 5.0% 10 2.5% 227 4.7% 30 4.7% 257 4.9%
Muscular Dystrophy 177 3.9% 24 1.8% 12 2.9% 213 4.4% 14 2.2% 227 4.3%


Back To Top


8 Comparisons with national data 

8.1 Numbers of users compared with HRDLA recipients† 

  No. HRDLA recipients (a) No. 93 Fund users (b) No. Ext Fund recipients (c) (b) as % of (a) (c) as % of (a)
England
Scotland
Wales
286,520
41,320
27,580
6,187
1,350
1,119
4,491
1,319
406
2.2%
3.3%
4.1%
1.6%
3.2%
1.5%
GB 
N. Ireland 
355,420
26,080
8,656
350
6,216
623
2.4%
1.3%
1.7%
2.4%
UK 381,500 9,006 6,839 2.4% 1.8


8.2
Users/HRDLA recipients compared with overall population

93 Fund No. HRDLA
 recipients (a)
No. 93 Fund users (b) Population aged 15-64 (c)  (a) as % of (c) (b) as % of (c)
England
Scotland
Wales
286,520
41,320
27,580
6,187
1,350
1,119
32,567,400
3,376,000
1,837,400
0.88%
1.22%
1.50%
0.02%
0.04%
0.06%
GB
N. Ireland
386,700
26,080
8,656
350
37,780,800
1,082,000
1.02%
2.41%
0.02%
0.03%
UK 412,780 9,006 38,862,800 1.06% 0.02%

 

Ext Fund No. HRDLA recipients (a) No. Ext Fund users (b) Population aged 15-64 (c) (a) as % of (c) (b) as % of (c)
England
Scotland
Wales
286,520
41,320
27,580
4,491
1,319
406
32,567,400
3,376,000
1,837,400
0.88%
1.22%
1.50%
0.01%
0.04%
0.02%
GB
N. Ireland
386,700
26,080
6,216
623
37,780,800
1,082,000
1.02%
2.41%
0.02%
0.06%
UK 412,780 6,839 38,862,800 1.06% 0.02%


8.3
Age profile of users compared with HRDLA recipients

Great Britain No. HRDLA recipients (a) No. 93 Fund users (b) No. Ext Fund recipients (c) (b) as % of (a) (c) as % of (a)
16 - 25 yrs
26 - 35 yrs
36 - 45 yrs
46 - 55 yrs
56 - 65 yrs
34,100
44,520
67,480
88,000
121,320
1,659
2,017
1,913
1,619
1,152
223
1,460
1,437
1,110
965
4.9%
4.5%
2.8%
1.8%
0.9%
0.7%
3.3%
2.1%
1.3%
0.8%
16 - 65 yrs 355,420 2,771 2,075 0.8% 0.6%


Northern Ireland No. HRDLA recipients (a) No. 93 Fund users (b) No. Ext Fund recipients (c) (b) as % of (a) (c) as % of (a)
16 - 25 yrs 
26 - 35 yrs
36 - 45 yrs
46 - 55 yrs
56 - 65 yrs
2,522
3,625
5,430
6,306
8,197
71
69
77
62
59
41
129
90
92
106
2.8%
1.9%
1.4%
1.0%
0.7%
1.6%
3.6%
1.7%
1.5%
1.3%
16 - 65 yrs 14,503 121 198 0.8% 1.4%

   
Notes

HRDLA statistics for Great Britain as at August 2002

HRDLA statistics for N Ireland as at March 2002

Population statistics from ONS 2001 Census

Back To Top
                   
Click here to view the geographical distribution of users at 31 March

Back to Newsletters/Reports

 
Click to go to the top of the page Click to go to the top of the page Click to go to the top of the page